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My pain management doctor may be the most important physician I see on a regular basis. Now my pain is mostly from stress fractures and arthritis. It's a constant trial-and-error process of what med works to relieve pain and what doesn't. I never did like to take the hard stuff, like Percocet, mainly because of the side effects ( especially constipation). So, it's normally something to "take the edge off" the pain, not something that will knock me out or make me woozy the next day.
I'm glad there are pain management doctors now. I'm also glad pain is taken more seriously compared to when I was a child. OI is tough enough to deal with. There is no reason to be in constant pain anymore. No reason to be brave and try to "tough it out." After a lifetime of so much hurt, there is no reason to hurt anymore.
Nowadays my doctors listen more. They rely on me to tell them how I feel. OI is still a rare animal in the scheme of things. It's important for doctors to listen and trust their OI patients. We are the only ones who know how it feels.
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